Purpose of the post

HDR UK is looking for an experienced system operations and data manager to support its work setting up the Dementia Trials Accelerator. The Dementia Trials Accelerator is expanding the opportunities available for people at risk of or diagnosed with early-stage dementia to participate in research. With promising new treatments on the horizon for neurodegenerative conditions, it’s crucial the UK improves the infrastructure for clinical trials to ensure people don’t miss out. Driven by the UK Dementia Research Institute (UK DRI) and Health Data Research UK (HDR UK), and funded by the Medical Research Council (MRC), the Dementia Trials Accelerator will tackle the historically low numbers of people enrolled into dementia trials in the UK.

As an integral member of the Dementia Trials Accelerator team, the Operations and Data Manager will work within trusted research environments, participant contact systems and with our many partners. Defining appropriate data formats for secure data transfer and ensuring those transfer mechanisms are working on a day-to-day basis with data arriving from all partners, being mapped and formatted correctly. Diagnosing and debugging day to day integration and data issues working with our partners and technical teams.

The role is highly collaborative and would suit and individual familiar and comfortable working with IT systems, integrations and sensitive data as part of a small team who collaborate with many external partners and stakeholders.

Main responsibilities

a) Data & Systems Integration

· Definition and subsequent iteration of data formats to be exchanged between systems

· Working with the technical team to ensure system integrations are setup and operating correctly with appropriate levels of security and encryption

· Ensuring data exchange processes are clearly documented and support data security and integrity

· Document data backup and recovery strategy and ensure it is implemented

· Mapping data received to OMOP common data model working in partnership with OMOP expert partner to ensure Cohort Discovery is operational

· Document data risks in the system along with appropriate mitigations

· Support integration work to securely exchange participant related data across the partners involved in the Dementia Trials Accelerator

· Ensure smooth construction and versioning of the Dementia Trials Accelerator cohort dataset.

b) Systems & Operational management

· Support the day-to-day smooth running of the systems and integrations that underpin the Dementia Trials Accelerator participant signup and appointment process, ensuring a quality service is provided

· Ensure data is flowing correctly between systems at all times and debug as necessary.

c) Partnership working

· The Dementia Trials Accelerator is a highly distributed and collaborative team, working in partnership to deliver

· Work with standards bodies and partners to drive forward new representations of data and variables where not already available

· Work in partnership with technologists and data infrastructure specialists across the Institute and with a range of external partners.

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